Links
Cytogenetics
American Board of Medical Genetics American College of Medical Genetics - Policy Statements American College of Medical Genetics - Professional Practice Guidelines Canadian Genetic Disease Network Chromosome 18 Registry & Research Society Chromosome Database DNA Learning Center Genetests Genetics/Ethics - Shriver Center, Genetalk, Geneletter Chat Group Mountain States Genetics Network National Human Genome Research Institute (NHGRI) - ELSI National Society of Genetic Counselors
Medical Issues - General
Centers for Disease Control and Prevention Food and Drug Administration National Human Genome Research Institute National Institutes of Health (NIH) Office of Genomics and Disease Prevention Office of Rare Diseases World Health Organization
Single Gene Disorders
NIH Consensus Statement on Breast Cancer Screening NIH Consensus Statement on Genetic Testing for Cystic Fibrosis
Support Groups/Parent Organizations
Angelman Syndrome Foundation Association for Retarded Citizens Canavan Research Foundation Chromosome 18 Registry & Research Society Cystic Fibrosis Foundation Down Syndrome Family Empowerment Network Dysautonomia Foundation Fabry Support and Information Group Familial Dysautonomia Hope Foundation Factor V Leiden Activated Protein C and Activated Protein S Support Page Five P- Society (Cri du Chat Syndrome) Genetic Alliance March of Dimes National Down Syndrome Society National Fragile X Foundation National Gaucher Foundation National Hemophilia Foundation National Niemann-Pick Disease Foundation National MPS Society National Organization for Rare Disorders National Parent to Parent Network National Tay Sachs and Allied Diseases Our Kids Prader-Willi Alliance of New York SOFT (Support for Trisomy 13/18) Spina Bifida Turner's Syndrome UCSF-Stanford Lysosomal Disease Center Upside! Down Syndrome Society Williams Syndrome Association
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